Genetic Disorders, Health Directory, Alternative Medicine, Long Term Care, Nursing

Alagille Syndrome Alliance
Worldwide support network for people who care about people with alagille syndrome.
http://www.alagille.org/

Canadian Association of Genetic Counsellors
works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.
http://www.cagc-accg.ca/

Chromosome 9P- Network
international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome.
http://www.9pminus.org/

Costello Kids
Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links.
http://www.costellokids.co.uk/

Fatty Oxidation Disorders
Informational site provides details on newborn screening, on numerous diseases, medical information and support resources such as a newsletter and email List.
http://www.fodsupport.org/

Gene Clinics
Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.
http://www.geneclinics.org

Genetic Alliance
provides a global resource for genetics information including a directory of condition-specific lay advocacy member groups.
http://www.geneticalliance.org/

Genetic Health
offers general information on conditions, DNA mutations, genetic testing, and research participation.
http://www.genetichealth.com/

Genetic Interest Group
national U.K. alliance of organizations which support children, families, and individuals affected by genetic disorders and genetic diseases.
http://www.gig.org.uk/

Hereditary Angioedema Support Group
A non profit Organization dedicated to those families that are touched by a rare blood disease known as Hereditary Angioedema
http://www.hereditaryangioedema.com/

Hereditary Disease Foundation
nonprofit, basic science organization dedicated to the cure of genetic disease.
http://www.hdfoundation.org/

IMMD Institute of Medical Molecular Diagnostics Ltd.
The IMMD is a genetic testing laboratory located in Germany. Provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood.
http://www.immd.de/

International Joseph Disease Foundation
Offers education, medical referrals, up-dates, and support to all individuals interested in Machado-Joseph Disease.
http://www.ijdf.net

Joubert Syndrome Foundation
Organization, conferences and contact details. FAQs about the disease, information center and resources.
http://www.joubertfoundation.com/

Laurence Moon Bardet Biedl Society
Fully accessible site for people with LMBB, their families, friends, carers and interested professionals. Opinions, news, views, research, updates, and contact details.
http://www.lmbbs.org.uk

Mucolipidosis IV Foundation
information forum on ML$, a rare genetic disease.
http://www.ml4.org/

Nail Patella Syndrome Worldwide
The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization.
http://www.nailpatella.org

Pallister-Hall Syndrome: A Layman's Guide
For PHS patients, their care givers, and medical practitioners.
http://www.pallisterhall.com/

Pallister-Killian Syndrome
information and support for this rare chromosomal disorder.
http://www.pk-syndrome.org/

Proteus Syndrome Foundation
Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
http://www.proteus-syndrome.org/

Alpha-1 Antitrypsin Deficiency (4)

Batten (4)

Cystic Fibrosis (25)

Down Syndrome (11)

Ectodermal Dysplasia (3)

Fragile X Syndrome (5)

Hemochromatosis (8)

Hereditary Spastic Paraplegia (2)

Klinefelter Syndrome (3)

Opitz Syndrome (2)

Organizations (12)

Personal Pages (3)

Prader-Willi Syndrome (4)

Sanfilippo Syndrome (3)

Shwachman Syndrome (2)

Turner Syndrome (2)

Urea Cycle (2)

Williams Syndrome (2)

Xeroderma Pigmentosum (3)