Health Directory, Alternative Medicine > Diseases and Conditions

works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.

http://www.cagc-accg.ca/

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Chromosome 9P- Network

international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome.

http://www.9pminus.org/

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Costello Kids

Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links.

http://www.costellokids.co.uk/

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Fatty Oxidation Disorders

Informational site provides details on newborn screening, on numerous diseases, medical information and support resources such as a newsletter and email List.

http://www.fodsupport.org/

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Gene Clinics

Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients.

http://www.geneclinics.org

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Genetic Alliance

provides a global resource for genetics information including a directory of condition-specific lay advocacy member groups.

http://www.geneticalliance.org/

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Genetic Health

offers general information on conditions, DNA mutations, genetic testing, and research participation.

http://www.genetichealth.com/

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Genetic Interest Group

national U.K. alliance of organizations which support children, families, and individuals affected by genetic disorders and genetic diseases.

http://www.gig.org.uk/

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Hereditary Angioedema Support Group

A non profit Organization dedicated to those families that are touched by a rare blood disease known as Hereditary Angioedema

http://www.hereditaryangioedema.com/

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Hereditary Disease Foundation

nonprofit, basic science organization dedicated to the cure of genetic disease.

http://www.hdfoundation.org/

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IMMD Institute of Medical Molecular Diagnostics Ltd.

The IMMD is a genetic testing laboratory located in Germany. Provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood.

http://www.immd.de/

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International Joseph Disease Foundation

Offers education, medical referrals, up-dates, and support to all individuals interested in Machado-Joseph Disease.

http://www.ijdf.net

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Joubert Syndrome Foundation

Organization, conferences and contact details. FAQs about the disease, information center and resources.

http://www.joubertfoundation.com/

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Laurence Moon Bardet Biedl Society

Fully accessible site for people with LMBB, their families, friends, carers and interested professionals. Opinions, news, views, research, updates, and contact details.

http://www.lmbbs.org.uk

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Mucolipidosis IV Foundation

information forum on ML$, a rare genetic disease.

http://www.ml4.org/

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Nail Patella Syndrome Worldwide

The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization.

http://www.nailpatella.org

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Pallister-Hall Syndrome: A Layman's Guide

For PHS patients, their care givers, and medical practitioners.

http://www.pallisterhall.com/

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Pallister-Killian Syndrome

information and support for this rare chromosomal disorder.

http://www.pk-syndrome.org/

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Proteus Syndrome Foundation

Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.