Health Directory, Alternative Medicine > Diseases and Conditions > Genetic Disorders

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A Wish for Wendy

Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis.

http://wishforwendy.org

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About TOBI and the Management of Cystic Fibrosis

Information on Tobramycin Solution for Inhalation (TOBI) for pseudomonas infection, by pharmaceutical agency.

http://www.abouttobi.com

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Ambry Genetics

Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.

http://www.ambrygen.com/

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Billycook.com

Billy Cook battled cystic fibrosis and died. The site generates funding for patients of this deadly disease.

http://www.billycook.com

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Cindy's Friends

Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.

http://www.cindys-friends.com

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Cute Petite Chic - A Cystic Fibrosis Web

Basic information with good description of sweat test, memorial page for a girl lost to CF at age 9, details of her last days and link to give in her memory through Great Strides.

http://www.cuteptchic.com

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Cystic Fibrosis Medicine

Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family

http://www.cysticfibrosismedicine.com

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Cystic Fibrosis Research Inc.

News about CF research. Site also has a newsletter available.

http://www.cfri.org/

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Cystic Fibrosis Resource Centre

A source of information for cystic fibrosis patients, parents, doctors and other carers.

http://www.cysticfibrosis.co.uk

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Cystic Fibrosis Services

A subsidiary of the Cystic Fibrosis Foundation and a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF).

http://www.cfservicespharmacy.com/

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Cystic Fibrosis Symptom

Cystic Fibrosis Information and Resources.

http://www.cystic-fibrosis-symptom.com/

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Cystic Fibrosis Western Australia

Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.

http://www.cysticfibrosiswa.org

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Cystic-L

Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.

http://Cystic-l.org

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CysticFibrosis.com

Internet community for cystic fibrosis patients, families and loved ones.

http://www.cysticfibrosis.com/

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Kate McCloughan Krzyzak

Obituary site.

http://www.princesskatherine.net/

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Michigan Pulmonary Disease Community, Inc.

Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis.

http://www.mpdci.org

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MyCysticFibrosis.com

Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.

http://www.mycysticfibrosis.com

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North American Cystic Fibrosis Conference in New Orleans

Information on program and location.

http://www.nacfconference.org

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Providence Cystic Fibrosis Center

Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.

http://www.cfcenter.net/

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Sharktank.org

Dedicated research for a cure for cystic fibrosis.