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Provides information and support for people with Fabry disease, their caregivers and families, and their health care providers.
Information about an ongoing observational database that tracks the natural history and clinical outcomes of patients with this disease.
Information about the group and this disease. Join the group free of charge and receive a newsletter.
Provides in depth education and support for patients and families.
An organization offering support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.
