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American Foundation for Urologic Disease

http://www.afud.org/
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Anaphylaxis Foundation and Anaphylaxis Network of Canada

offers product alerts and registry for product recalls and research and advocacy data.

http://www.anaphylaxis.org/
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Beryllium Support Group

information about chronic beryllium disease (CBD).

http://www.beryllium.org/
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Canadian Organization for Rare Disorders

committed to the enhancement of the lives of all persons affected by rare disorders.

http://www.cord.ca/
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Children Afflicted with Lymphatic Malformations - CALM

organization of parents and children afflicted with lymphatic malformations. Offers information, support, medical references, and encourages research to improve treatment.

http://www.staycalm.org/
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Coeliac Society

U.K. society offers information and advice on coeliac disease.

http://www.coeliac.co.uk/
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Dystonia Medical Research Foundation

works to increase an understanding of dystonia through research, awareness, and support.

http://www.dystonia-foundation.org/
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Family Caregiver Alliance

info, education and services for families and professionals who care for adults with cognitive disorders, including Alzheimer's, stroke, Parkinson's, brain injury, brain tumors, Huntington's, and other brain impairments.

http://www.caregiver.org/
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Hughes Syndrome Foundation

offers details of antiphospholipid syndrome and its treatment, research, and the foundation.

http://www.hughes-syndrome.org/
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International Adhesions Society

http://www.adhesions.org/
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International Immunocompromised Host Society

Offering a multidisciplinary forum for scientific and clinical interchange to improve management of Immunocompromised Patients.

http://www.ichs.org/
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International Pelvic Pain Society

http://www.pelvicpain.org/
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International Society for the Study of Cough

Promotes research in cough and encourages the exchange of ideas and information.

http://www.issc.info/
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Irritable Bowel Syndrome (IBS) Self Help Group

including a bulletin board, library, and web ring.

http://www.ibsgroup.org/
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Klippel-Trenaunay Support Group

provides information about the group and about syndrome, and to provide families, adults with K-T, and professionals with links.

http://www.k-t.org/
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Lois Joy Galler Foundation

acquires the funds needed to conduct research and develop methods of preventing or curing Hemolytic Uremic Syndrome (HUS).

http://www.loisjoygaller.org/
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Medsupport: Friends Supporting Friends

provides 24 hr. support on the net via forums, chats, information, newsletters and articles in text and real audio, pen pals, members stories, and our own television show.

http://www.medsupport.org/
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Mia Hamm Foundation

supporting research of bone marrow diseases.

http://www.miafoundation.org/
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Myoclonus Research Foundation

http://www.myoclonus.com/
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National Aphasia Association

aphasia is an impairment of the ability to use or comprehend words - often a result of stroke or head injury.

http://www.aphasia.org/
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