The 8th International Symposium on MPS and Related Diseases will be held in Mainz, Germany. Traditionally, this symposium unites scientists, patients and their parents to share and discuss recent scientific results.

National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.

Non-profit voluntary support group for families affected by rare chromosome disorders.

Information on rare chromosomal disorders. Support and advice for families.

Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information.

A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).

Maree-Medical sells all kinds of incontinence products online. Also diapers and plastic pants for bedwetting and nursing products.

A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.

This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.

Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.

Support and information for families of children with rare disorders.

The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria.